Families concerned they will be prevented from visiting loved ones at Christmas after having been barred on Thanksgiving
A nonprofit organization that was appointed as the guardian of at least two developmentally disabled individuals has imposed what appear to be illegal restrictions on visits to them from their families.
In each case, an employee of the corporate guardian, TLC Trust, Inc., appears to have been involved in preventing the families of Ryan Moran and Naomy Alicea from visiting them on Thanksgiving Day last month.
And in each case, Ryan’s and Naomy’s parents are concerned they will similarly be barred from visiting them in their Worcester-based group homes over the upcoming Christmas holidays.
The family members maintain in each case that the visitation restrictions have resulted from their complaints that their loved ones have been subjected to abuse or neglect in their provider-operated residences.
Naomy, 37, has an intellectual disability (ID) and cerebral palsy. Ryan, 29, has ID and is on the autism spectrum.
Hilda Natal, Ryan’s mother, said that the Department of Developmental Services (DDS) had Ryan placed in a group home run by Venture Community Services in 2020, when he was 24.
Naomy has been living in a separate group home in Worcester, which is operated by the Seven Hills Foundation. Both Venture and Seven Hills are DDS-funded residential providers.
Members of both families contend that their guardianships of their loved ones were removed for questionable reasons. DDS successfully petitioned in Worcester Probate Court to have TLC Trust appointed as the guardian of each individual instead.
It is unclear why TLC has been appointed as guardian of these clients. TLC’s website states that the organization primarily administers trusts with a minimum value of $100,000 for persons with developmental and other disabilities.
While the TLC website says the organization can also act as a corporate guardian for persons, the website further states that, “First priority for this (guardianship) service will be given to those individuals who have a trust relationship with the organization.” It does not appear that any such trust account with TLC exists in either Ryan’s or Naomy’s case.
We believe the visitation restrictions violate DDS regulations, which state that DDS clients have the “right to be visited and to visit others under circumstances that are conducive to friendships and relationships.” Also, the individual’s family members “shall be permitted to visit at all times, unless the individual objects…”
Visitation restrictions correlate with allegations of abuse or neglect
In both cases, the visitation restrictions appear to have followed from allegations by the families of neglect or abuse by the staff.
In each case, DDS and the corporate guardian appear to have blamed the families for causing problems such as allegedly causing agitation in their loved ones after their visits. But while clients may well become agitated, especially at the end of a visit, the cause of that agitation may actually be that the family member is leaving the client alone with the staff.
If there is neglect or abuse by the staff, that can be sufficient reason for a client to become agitated when the family member leaves.
Commissioner’s help sought in allowing visits
On November 25, I wrote to DDS Commissioner Sarah Peterson to urge that DDS allow Ryan’s family to visit him on Thanksgiving Day. Since then, we learned that a similar prohibition on visits was imposed on Naomy’s parents, and that TLC and its employee, Diane Parker, were involved in each case in imposing the restrictions.
As noted, neither family was allowed to visit on Thanksgiving. We are urging the Department to allow family visits during the Christmas and New Year’s holidays and to review the actions of TLC in restricting family visitation in each case.
Last week, Commissioner Peterson responded, thanking me for “reaching out with (my) concerns,” and saying she had “followed up with the local teams on the specifics of these cases. While I know you understand that I cannot comment on specific cases, please be assured that they are engaged and will follow up,” she wrote.
Peterson added that, “In terms of TLC Trust, Inc. serving as a guardian, I cannot speak to their requirements for taking private pay cases (which you identified from their website), but I can tell you that TLC Trust qualified through state procurement procedures to receive and accept appointments from DDS.”
Naomy’s case
Lizvette Rivera, Naomy’s mother, said she lost her guardianship of Naomy after a former family acquaintance made several accusations against Lizvette in 2018, which Lizvette and her other daughter, Catiria, claim were false.
DDS petitioned in Worcester Probate Court in 2018 to remove Lizvette as guardian and install TLC. Lizvette said her removal was based on the false accusations made against her, which were nevertheless presented as true in a Guardian ad Litem report to the Probate Court in 2019.
Lizvette and Catiria alleged numerous health scares at Naomy’s group home. They said that in one case, Naomy developed a urinary infection that required hospitalization because she was forced to shower by herself even though her family had repeatedly said she required support.
Naomy was subsequently prescribed medication that Lizvette and Catiria claim negatively altered her behavior. But when they questioned this, the residential staff imposed further visitation restrictions on them. They said they are frustrated by their inability to receive health information about Naomy from medical professionals, especially in light of her health complications.
Ryan’s case
Ryan’s mother and father, Hilda Natal and Jose Moran, said they have been barred from visiting him since early October because their visits were allegedly causing him emotional distress. As noted above, we strongly question whether it was the case that their visits could have caused that.
Jose said that on Thanksgiving day, he and Hilda tried to visit their son, but that the group home manager called Parker, the TLC Trust employee, who said visits were not being allowed by a DDS attorney. The house manager then threatened to call the police, and Hilda and Jose left.
Phone taken
Jose said that the group home staff also recently confiscated Ryan’s cell phone, with which he had been communicating with his parents on FaceTime. Jose said a staff member told him the phone was being kept in the group home office because the phone was not working. But Jose questions that because the phone is new. Without the cell phone, Ryan’s parents are only able to communicate with him via the group home’s landline phone in the office.
Hilda also said that when Ryan did have his phone, group home staff would stand outside his room, listening to his conversations. She said that in October, the house manager said Ryan would be required to leave his bedroom door open when he talked to his parents on his phone.
The DDS regulations cited above state that clients have the right to have reasonable access to a telephone other web-based communication, and the right “to make and receive confidential communications.” They also have the right “to keep and use personal possessions.”
Judge blames parents, but provides few details
In Ryan’s case, a probate court judge appears to have sided with DDS and TLC in finding that his parents’ visits to him were “problematic.” In a December 9, 2024, document titled, “Brief Findings and Rationale,” Worcester Probate Court Judge Roxann Tetreau stated that “visits with (Ryan’s) parents at the group home …would result in (Ryan) engaging in behaviors after they left.” As a result, the judge said, the group home and TLC restricted family visits.
Tetreau’s findings, however, provided no supporting details. The judge did state that: “It is again clear from the evidence that Jose and Hilda love their son…They do not, however, understand what (Ryan) needs…” The judge appears, however, to have accepted DDS’s and TLC’s claims about Ryan’s parents and to have disregarded the parents’ point of view.
Abuse and neglect of Ryan
There was also no mention in Tetreau’s findings of Hilda’s allegation that Ryan was repeatedly abused by staff in a day program job he had, starting in 2017. She said the abuse caused Ryan to have an anxiety crisis, and she then told him to stop working there. After that, she said, DDS petitioned in probate court to remove her as Ryan’s guardian. She said DDS made false statements in court about her and Ryan.
Neglect and restrictions on visits
Neglect and severe restrictions on family visitation imposed by group home providers seem to go together, and we have brought several of those cases to the attention of Commissioner Peterson in recent months.
When there is neglect and family members complain, the instinct of providers and DDS is often to deny families access to their loved ones in their residences. That way, the neglect itself does not have to be addressed.
We are asking that DDS investigate the allegations of abuse or neglect in each of these cases and to work with the families to find more suitable residential settings.
In the meantime, we are urging Commissioner Peterson to ensure that both of these families are allowed to visit their loved ones over the Christmas and New Year’s holidays.
It speaks to the dysfunction of the DDS system and the court system that parents are so routinely disregarded by the courts and DDS and its providers are so routinely just “believed”. Why is it so hard to imagine that individuals with intellectual disabilities are neglected and abused in group homes? Why is it automatically assumed the parents must be crazy? Judges may not be familiar with the ins and outs of DDS, but the agency itself surely is. Why are they not protecting families from these providers?
So even if a parent loses guardianship (which in itself should be highly suspect), what is the excuse for keeping a family away from their child for the holidays? For taking their cell phone and saying it is “broken”? The system is what is broken. I have been around long enough to remember when DDS was a great agency. Families won three class action lawsuits – Ricci v Okin, which reformed the ICF’s and built an admirable community system, Rolland v Cellucci, which forced DDS to stop inappropriately dumping people with ID in nursing homes, and Boulet v Cellucci which stopped DDS from maintaining a twenty plus year waiting list. These lawsuits were not perfect, and resulted in concessions on both sides, but what we have currently in DDS is a system run amok – by providers who are in charge, a department that provides zero oversight, and families and individuals who are abused by this broken system.
Common sense no longer prevails. Families cannot visit their loved ones during the holidays? Illegal and in complete violation of all state regulations. Admissions to ICF’s are not allowed even for our most impaired people? Again – illegal and a complete violation of DDS regs. Do only lawsuits work with DDS? And now the latest and greatest plan – just keep your severely autistic kids home and add a wing on to your house. Awesome – if you are a millionaire and under age 50 with the ability to find great staff. All this because “group homes are just not sustainable”.
Get a clue DDS. Massachusetts is clearly trying to get out of the business of caring for people with Intellectual Disabilities, and those providers who stay in the business are doing it for the money and the abuse of power this system allows. This is backsliding of the highest order and it is being allowed by state and federal government – by an administration who only listens to providers, and by legislators who for the most part pay zero attention to people who cannot vote.
I hope and pray to see change in my lifetime and I hope and pray there is someone at DDS and in the Healey Administration who can see the harm being done to intellectually disabled and autistic people and their families – someone who can and will step up and stop the many abuses of power and travesties of justice that happen on a regular basis. What have we become as a society?
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Well said!
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Why does everyone assume that parents are automatically disbelieved and providers believed? Well, it’s because the story you are telling is one-sided.
For obvious reasons, any professional working with these families cannot disclose CONFIDENTIAL information about their clients. If they did, guess what you would be blogging about next?
While I do applaud people standing up for vulnerable people’s rights, defaming human service professionals certainly does not help either. For very little pay (trust me most people would make more at Dunkins), and very large caseloads, with a lot of heart, energy and effort – many good people leave the field because it is so thankless. God help us all (and especially the vulnerable populations served) when nobody wants to do this work anymore.
I do appreciate the blogger providing citations. Please re-read the regulations as you left out major components:
(3) The right to be visited and to visit others under circumstances that are conducive to friendships and relationships, in accordance with the following requirements:
(a) An individual shall be permitted to receive visitors, unless ill or incapacitated to the degree that a visit would cause serious physical or emotional harm; provided that the individual’s attorney, guardian, legal or designated representative, personal physician, clergy, or family members shall be permitted to visit at all times, unless the individual objects, and shall be provided with a suitable place to confer on a confidential basis;
(b) Reasonable restrictions may be placed on the time and place of the visit in order to protect the welfare of the individual or the privacy of other individuals and to avoid serious disruptions in the normal functioning of the provider. Arrangements shall be made for private visitation to the maximum extent possible; and
(c) Denial of visitation or restrictions for any reason other than those stated in 115 CMR 5.04(3)(b), shall be treated as a modification of the ISP, and requires compliance with the regulations governing ISP modifications. The human rights committee shall be notified of the intention to deny or restrict visitation no later than the next meeting following the ISP modification meeting or, in the case of the waiver of an ISP modification meeting, at the next meeting following the implementation of the ISP modification.
Did you check to see if these individuals ISPs address these concerns? Nope, I bet you didn’t.
Don’t misunderstand, advocacy is absolutely NEEDED. Try supporting these families by sitting by their side during ISPs and court hearings. But, publicly shaming people without all of the facts – well that is just slander.
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Also, this was not intentionally posted as a reply to your comment. I tried to post it as a general comment, but it would not go through in that manner,
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To Anonymous: We strive to be fair and truthful in our posts and to back up all claims with on-the-record testimony or documentation. In multiple posts we have cited the complete visitation regulations. None of those regulations justify a complete ban in visitation as has occurred in these cases. There is no information we have been able to find, for instance, that either of these families has been disruptive when they have been allowed to visit. We have never seen an ISP that disallowed all visitation. You said that our reporting is one-sided, but then you acknowledged that neither DDS nor the provider will comment due to confidentiality requirements. What we are pointing out is an apparent violation of the rights of the clients of two DDS-funded residences. We did write to the DDS commissioner beforehand to ask for the Department’s side of the story. Are you suggesting that because DDS won’t comment that the public should not hear about possible violations of DDS clients’ rights? You have accused us of defamation and slander. Defamation involves the publication of facts that are untrue. What have we stated that you know to be untrue here and who was it about? We are always ready and willing to correct any information we have published that has been shown to be false.
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DDS made false statements ??? Why do I believe that ?
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DDS hires attorneys, but they use a distributed legal staffing model. They are embedded in regional offices, area offices, Office of Investigations, Office of Human Rights, hearing units, Offices of the General Counsel at EOHHS, and more. The commissioner herself is an attorney. However, the job title of these particular employees is usually something other than “attorney.” It could be something like compliance specialist, program monitor, etc. In addition, DDS spends money on public relations, but it is hidden. It uses the EOHHS communications department for press releases, website content, media responses, crisis communications, messaging strategy, legislative talking points, and social media. In addition, contracted PR includes communications consultants, graphic design vendors, website contractors, crisis communications firms, and legislative messaging consultants. There also may be internal staff performing PR functions, but are not coded as PR. According to an AI modeling estimate, DDS spends between $1.5 million and $4 million on PR. AI bases this estimate on the size of DDS (over $2.7B budget), EOHHS communications staffing, DDS administrative spending, known vendor contracts, and comparable agencies.
How much money do these families have to spend on attorneys and on public messaging? Probably nothing. The deck is stacked against them from the outset because they don’t have anywhere near the resources the state has. The judge believes the DDS because they have heard the professional messaging, and they are responsive to legal expertise that the state can employ. The families don’t have these resources- so that is why we are seeing this.
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It is hard to imagine how subjecting Ryan to a practical surveillance state reflects DDS’ proclaimed mission of assuring “respect for the human rights and dignity of people with developmental disabilities.”
Maura Drummey
Deputy Director of Advocacy and Development
COFAR, Inc. (The Massachusetts Coalition of Families and Advocates)
http://www.cofar.org
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Preventing family members to visit and taking a cell phone is a violation of the community rule. DDS always lies, they are not what is ever best for the individual and the state owns the courts and the judges they appoint. I speak from experience. The paid guardian and DDS are the ones traumatizing by not meeting the individual’s needs and withholding them from those who love them.
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My sister was put in a wheelchair by these people at venture community services. Sham investigation yielded no results no culpability no anything. If you value your loved ones health do not let them near them. What happens in the house stays in the house and they all protect each other and are some of the most despicable people so have ever come across.
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This is awful and scares me a lot. Rethinking group home option now. No one should have that much power over a much loved family member. Thanks for all you do.
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You are correct David Kassel, a rock and a hard place. Which is why I recommended you get personally involved in their cases. Since these parents have been very open with you about their side of the story, they won’t mind you accompanying them when they meet with their loved one’s team or at court.
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Dear Anonymous, If you have information about either of these cases that shows that anything we have written is wrong, please feel free to get in touch with me. My email is davidskassel@gmail.com. Do you oppose allowing these families to visit their loved ones?
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