COFAR blog

It appears that the Baker administration is examining what has been termed “encouraging” testing and hospitalization data on COVID-19 in considering whether to reopen the Massachusetts economy.

We hope the administration will consider, among other things, testing data in the Department of Developmental Services (DDS) system. If not, this could be another example of the apparent disregard the administration has shown for the risk the virus poses to people with intellectual and other developmental disabilities.

Over the past weekend, the Massachusetts State House News Service reported that the administration was looking at  “a number of (COVID-19) metrics considered key to resuming economic and social activity…” That data “showed positive signs” in the most recent report from the Department of Public Health (DPH ), the news service stated.

According to the News Service, the number of COVID-19 patients hospitalized in Massachusetts has declined in 10 of the last 13 days.

But the data isn’t encouraging in the DDS group home system. So, we are concerned that reopening the economy may add to the risks that residents and staff are facing in DDS group homes, in particular. If numbers of COVID-19 cases are still rising in the DDS system, it would have safety implications for all residents in the state.

Data from DDS show that the number of DDS provider-operated group homes reporting residents testing positive rose from 800 to 900 homes (out of 2,100 homes) in a four-day period, from May 4 to May 7. Eight additional residents and four additional staff tested positive at the Wrentham Developmental Center during that period, while the numbers at the Hogan Regional Center held steady.

Meanwhile, DDS is continuing to test residents and staff more slowly than planned, and the Department still has not made testing of staff mandatory.

Rate of testing in DDS group homes may be stalling

While testing all residents in all demographics is crucial in determining whether and when to reopen the economy and end the lockdown, the rate of testing in the DDS system does not appear to be meeting early expectations. In fact, it may actually be slowing.

Fallon Ambulance Service started testing group homes and developmental centers throughout the DDS system a month ago, and was supposed to be ramping up to 1,000 tests a day.

However, as of  April 29, Fallon was performing an average of only 405 tests a day, according to numbers we’ve analyzed from DDS. A week later, as of May 7, Fallon was actually performing an average of only 396 tests a day.

DDS reported that as of May 7, Fallon had done about 11,000 tests since starting on April 10. We are estimating that there are as many as 25,000 residents and staff in the group home system.

So, at that rate, it would still take Fallon at least another month to test the entire DDS system, and that doesn’t count retesting, which they apparently aren’t doing at all. In other words, more than half of the total residents and staff in the system still apparently have not been tested even once.

On a related note, we received a response on April 29 to a Public Records request to DDS for records on testing timelines and plans for testing all residents and staff in the system. DDS said they have no such records. They also have no records regarding the total number of staff in the provider system.

Seeking mandatory testing of staff

We also submitted written testimony today to the Legislature’s Public Health Committee to urge the adoption of legislation that would make it mandatory for staff in DDS facilities to be tested for COVID-19. As we have reported, staff are currently not required to be tested in the DDS system — a situation that leaves the residents in the system vulnerable to infected staff members who may well be asymptomatic.

The Public Health Committee is currently considering a nursing home safety bill (S.2657), filed by Senator Jamie Eldridge, which would require testing of all nursing home staff for COVID-19. We are urging the committee to amend the bill to include a provision for mandatory testing for all staff working in DDS-funded group homes.

As we understand it, the administration actually issued a requirement last month that all staff in nursing homes be tested. However, no such testing requirement has been imposed for staff in DDS facilities.

Questions about compliance with DDS guidance

We are also concerned about a possible lack of compliance among DDS group homes with the Department’s guidance on admission of staff and possibly visitors to those facilities, and on social distancing among other issues concerning care and conditions.

We received a report that staff from one group home took one or more residents to another of the provider’s group homes during the ongoing lockdown, and may have also admitted several people into a group home with no clear purpose for being there.

Late last week, we asked DDS whether the Department has policies or procedures in place for monitoring compliance by group homes with the Department’s guidance regarding the admission of staff into facilities, social distancing, proper use of personal protective equipment, and related issues.

A one-page guidance document sent last month to all providers by DDS states that there will be no one admitted to any facilities except for medically necessary reasons. Any visitors or staff must be screened and have no flu-like symptoms or a fever over 100 F. In addition, all staff should wear face masks during their shifts.

While it is important that DDS has issued this guidance, it means little if the Department has no way of determining whether the management and staff in the widely dispersed system are complying with it.

In sum, the well-being and even survival of people in the DDS system depends on the quality, speed, and thoroughness of the ongoing COVID-19 testing. The current state of that testing in the system raises many areas of concern for us.

Although the pace of mobile testing for COVID-19 of residents in group homes funded by the Department of Developmental Services (DDS) appears to be picking up, the testing of staff in those facilities is reportedly haphazard.

That is because it remains voluntary for staff in DDS-funded group homes to be tested even as the Baker administration has moved to make testing of staff in nursing homes mandatory.

This is one of a number of signs that the administration is treating people with intellectual and other developmental disabilities differently than it treats the elderly and other vulnerable populations. The administration, in fact, appears to be placing a lower priority on protecting people with intellectual and other developmental disabilities from COVID-19 than it places on other populations.

We have raised repeated concerns that:

• COVID-19 testing is not mandatory for staff in DDS-funded group homes, and there are currently no efforts underway to retest either residents or staff in the group homes on a periodic basis.
• Fallon Ambulance Service is increasing the pace of its testing in DDS facilities, but is still apparently too small a company to undertake even an initial round of testing in a timely manner. As of May 4, Fallon had tested roughly 10,000 residents and staff — a rate of about 400 tests a day since the testing program began on April 10.
• The National Guard, meanwhile, is reportedly being used to test residents and staff  in nursing homes and other long-term care facilities overseen by the Department of Public Health (DPH).
• The state Department of Public Health (DPH) posts daily updates on the numbers of deaths in Massachusetts and the number of persons infected with the coronavirus. But while these updates include numbers of persons in “long-term care facilities,” we have been informed that DPH defines long-term care facilities as nursing homes, rest homes, and skilled nursing facilities. DDS group homes are not included in that definition.
• There is no inclusion in the DPH updates, much less a breakout, of the numbers of  persons in the DDS group homes testing positive. Group homes are nevertheless long-term care  facilities that function as the homes of close to 10,000 persons throughout the state with I/DD.

On April 28, State Representatives Kay Khan and Josh Cutler, the House chair and vice chair of the Legislature’s Children, Families, and Persons with Disabilities Committee, expressed concerns similar to ours in a letter to Health and Human Services Secretary Marylou Sudders. Representatives Khan and Cutler stated that:

….information about the impact of COVID-19 on the Department of Children and Families, the Department of Developmental Services, the Department of Mental Health and the Department of Youth Services congregate care facilities is lacking. The number of positive cases and deaths due to COVID-19 are rarely mentioned in (Governor Baker’s) press briefings.

We have never, in fact, seen DDS Commissioner Jane Ryder or any other DDS officials present at any of these briefings.

DDS-funded group home testing of staff remains voluntary

The state engaged Fallon Ambulance Service last month to undertake mobile testing of an estimated 25,000 residents and staff in DDS-funded group homes and in the Hogan and Wrentham Developmental Centers.

Last week, Christopher Klaskin, the DDS ombudsman, said that the Department was “exploring” the possibility of making testing of staff mandatory, but also said that “given contractual relationships with unions across state government, the development of any mandate of this type requires input and approval.”

Klaskin did not specify whose approval would be needed. When I pressed him on that question in a subsequent email, he responded that “unions are one of several stakeholders whose input (not approval) would be needed for this type of requirement.”

We are continuing to seek an answer from DDS as to whose approval would be needed to institute a mandatory testing requirement for staff.

Klaskin also maintained that “very few” staff in group homes have refused to be tested. However, we received reports this past weekend from family members of residents in three group homes who said that while the residents were tested there, few, if any, staff were tested. Each family member was told that the reason for that is that testing of staff is voluntary.

Laura Watkins, whose son Kyle is in a group home in Framingham, said on Friday that all eight residents of the facility were tested last Wednesday and that seven of them, including her son, tested positive.

Watkins said she was told by the house manager that Fallon didn’t test any of the staff in the group home. She estimates that there are as many as 25 staff, including day program staff who are now supposed to come into the home for day activities.

Michael Person, whose daughter Maria is in a state-operated group home, said he was informed on Sunday that residents of the facility were tested on Thursday. He was told that Maria had tested negative. When he asked about testing of the staff, he was told no staff were tested because it was voluntary.

“I do not understand this,” Person said in an email. “There are three shifts going in and out of the group home, seven days a week, and it is optional for them to get tested. Does that make any sense?”

In an email to COFAR on Saturday, the mother of a resident in another group home said she was similarly told that while residents of the facility had been tested, none of the staff, other than the house manager, were tested because testing of staff is voluntary. Yet, she said, the staff “are the only people who could carry the virus into the home…It makes no sense to me.”

Continuing lack of personal protective equipment and training in DDS group homes

Watkins said she believes a factor in the spread of the virus to all or nearly all of the residents in her son’s group home was a lack of personal protective equipment (PPE) in the residence. She herself brought in handmade masks for the staff on March 22.

It was only on April 16, she said, after the state issued revised guidance, that the provider, the Justice Resource Institute, provided N95 masks to staff in the home, but no other PPE. Even so, the staff were still short eight masks.

It’s not clear that the staff are using gloves either, Watkins said. She suggested that the state’s COVID-19 Command Center send teams into all of the group homes to train all staff on PPE and other issues. “I’m finding that nobody knows what to do,” she said.

Number of group homes reporting positive cases is growing

As of May 4, a total of 890 DDS-funded group homes were reporting positive COVID-19 cases — a positive test rate in the group home system of 38%. That was up from 770 homes reporting positive cases as of April 29, just five days earlier. The positive test rate at that time among all group homes was 33%.

Also as of May 4, a total of 1,127 residents and 1,223 staff in the group homes had tested positive, while 48 residents and 69 staff had tested positive at the Hogan Regional Center, and 41 residents and 42 staff had tested positive at the Wrentham Center.

There had been 44 deaths due to the virus in the DDS system as of May 4, up from 37 deaths as of April 29.

Crisis standards of care are a step in the right direction

On April 23, I listened in on a teleconference of the state Public Health Council’s monthly meeting, which touched, of course, on a range of issues relating to COVID-19 and the protection of residents throughout the state from this disease. In one respect, it was heartening to hear during that discussion that in developing crisis guidelines, an effort was made to level the playing field in allocating resources such as ventilators to persons who are seriously ill with the virus.

As we understand it, the rule now for getting a ventilator if there is a shortage is that there has to be a reasonable probability that the person will be able to survive for five years. One of the doctors on the teleconference call said this change was adopted to give equal access to ventilators and other “scarce resources” to people with disabilities.

While we appreciate that acknowledgement of the importance of equal consideration of persons with intellectual and other disabilities, we hope we can impress upon the administration the anguish that family members and guardians are feeling during this crisis.

DDS families are struggling with restrictions — as are family members of virtually all persons in long-term care facilities — on having any contact with their loved ones. But the DDS families have the added stress that comes with feeling that, overall, the administration has dismissed their concerns.,

At the very least, we think there needs to be mandatory testing of all staff, and periodic retesting of all staff and residents in the DDS system. In addition, the families in the DDS system are entitled to the same level of daily information that is being made available to families of all other long-term care residents.

As the number of group homes reporting positive cases of COVID-19 continues to rise in Massachusetts, a Department of Developmental Services (DDS) official said the Department is considering making staff testing for COVID-19 mandatory.

COFAR has raised a concern that there currently is not a requirement that staff working in the group homes get tested even though DDS began an effort on April 10 to test all residents and staff in more than 2,300 residences across the state.

In addition, it is not clear that DDS has any plans to test residents and staff in its facilities more than once.

COFAR maintains that infected staff may be introducing the virus into group homes and other long-term care facilities. Unless all staff are required to be tested on a periodic basis, it appears likely that positive cases and deaths will continue to increase in those residences.

Christopher Klaskin, the DDS ombudsman, told COFAR yesterday (April 27) that “mandatory testing of all employees would impact multiple EHS (Executive Office of Health and Human Services) agencies and collective bargaining agreements, and we are exploring this option.”

Klaskin added that “very few employees have refused (to be tested), and those situations are addressed on a case-by-case basis.”

In a follow-up email to Klaskin, we said it was welcome news that DDS is exploring the option of mandatory testing, but asked why DDS hasn’t made staff testing a requirement before now.

We also asked how many staff have refused to be tested. It would take only one infected staff to infect an entire group home. We also noted that because DDS is still early in the group home testing program, it is likely that the number of staff refusing to be tested will continue to grow.

An official with one DDS provider, the New England Center for Children, told Boston.com yesterday that the first case of COVID-19 in the Center’s group homes came six weeks ago from an infected staff member who was asymptomatic. The provider’s group homes were locked down even at that time.

There is similarly no requirement that all staff in nursing homes around the state be tested. More than 56% of the total deaths in the state are in nursing homes and rest homes, the Boston Globe reported this week.

Numbers of infected DDS group homes rising rapidly

Data provided to COFAR by DDS shows that over a four-day period ending Sunday (April 26), the number of DDS-funded group homes reporting positive cases of COVID-19 rose from 560 to 720, out of a total of 2,353 corporate provider-operated and state-operated residences. That is an increase from 24% to 31% in the proportion of homes reporting infected residents.

As of April 26, a total of 1,886 staff and residents in the group homes and two remaining DDS developmental centers had tested positive. That is up 252 persons from just four days earlier. There have been 30 deaths in the DDS system from COVID-19.

Repeat testing needed

Earlier this month, DDS announced that the state was contracting with Fallon Ambulance Service to begin testing staff and residents throughout the system.  DDS apparently does not have a timeline for Fallon to complete its testing of what we are estimating to be 22,000 or more residents and staff in the DDS group home system.

It is also unclear whether DDS plans to have Fallon or any other entity periodically retest those individuals and staff who did test negative the first time.

COFAR President Thomas Frain termed a negative test result “a transitory label.” He added that, “Representing to the public that you are at war with the virus but aren’t retesting is akin to chasing Bin Laden across Afghanistan but allowing him free access to the Pakistan border.”

Referring to the need for repeat testing in nursing homes, Simon Johnson, a professor at the MIT Sloan School of Management and a cofounder of the COVID-19 Policy Alliance, told the Boston Globe that  a single round of testing is a “recipe for disaster.”

Johnson said the state needs to move “as quickly as possible to help implement a regular comprehensive surveillance testing program for all residents and staff, so we know who is infected and who is not.” Not only do some people carry the virus without displaying symptoms, some may test negative even though they have already been infected, Johnson told the newspaper.

State may be in violation of Medicaid waiver requirements

In an email to Klaskin and DDS General Counsel Marianne Meacham on Saturday, COFAR asked whether the lack of mandatory staff testing so far is a potential violation of client safety “assurances” under the federal Medicaid Home and Community Based Waiver.

The Waiver, which authorizes Medicaid funding for group homes and other community-based programs, states that states must provide assurances that “necessary safeguards have been taken to protect the health and welfare of the beneficiaries of the services.”

Klaskin responded that DDS and all EHS agencies follow testing protocols from the Centers for Disease Control and Prevention, “so they meet all federal safety regulations.” He added that DDS “must adhere to (the testing protocols) to meet our waiver requirements and safeguards.”

Klaskin added that “pop-up” testing locations are being set up across the state, “giving state and provider staff across multiple shifts another option for testing.”

We are continuing to monitor the testing of group homes across the commonwealth, and are hopeful DDS will make the right changes, particularly making the testing mandatory and repetitive. If that happens, we think and hope the numbers testing positive will peak sooner than they otherwise would, and will start to diminish.

While the Department of Developmental Services is now moving to test all residents in group homes throughout the state for COVID-19, COFAR is concerned about the slow pace of the testing and about a potentially major gap in the process.

That gap concerns the voluntary nature of the testing of staff in the thousands of group homes in the state. DDS officials acknowledged that staff can opt out of the testing and still continue to work in group homes.

More than 1,300 residents and staff of DDS group homes and developmental centers had tested positive for COVID-19 as of April 19, according to numbers that we are now beginning to get from DDS.

In the DDS group home system, 518 residents and 653 staff had tested positive, including both provider and state-employee staff.

More information has been available about the situation in the developmental centers than in the group homes.

As of April 19, 46 residents and 90 staff had tested positive at the Hogan Regional Center in Danvers. There has been one death at the center.

In the Wrentham Developmental Center, 14 residents and 13 staff have tested positive.

As of Wednesday, most clients at Hogan with COVID-19 were reported to have mild symptoms. Many were in recovery and had completed a 14-day quarantine period and  were symptom free. Workers at Hogan are reported to be fully gowned, gloved, and masked.

Staff testing is voluntary

Christopher Klaskin, the DDS ombudsman, said this week that staff in group homes can opt not to be tested even if residents in the homes in which they work are symptomatic or have tested positive. Under current DDS guidelines, the staff have to have their temperature taken before entering the residences and can’t have a temperature above 100.0 degrees.

COFAR is questioning the voluntary nature of the staff COVID-19 testing, arguing that staff who are positive but asymptomatic could be bringing the virus into group homes where the virus could then spread rapidly.

“Unless all staff and residents are tested, the virus still has the upper hand,” COFAR Board President Thomas Frain said.

Colleen M. Lutkevich, COFAR’s executive director, said the organization has received reports that testing of staff is not being offered by some providers and that each provider is making their own decision about it. Taking temperatures but not actually testing staff for the virus “misses all of the asymptomatic carriers in this vulnerable population,” Lutkevich said in an email to DDS.

Guidance issued by DDS to all providers on April 13 does not include any specific testing requirements for staff or residents other than stating that the permission of a guardian is needed before residents can be tested. DDS officials have stated that it would be unusual for a guardian to refuse to consent to testing of a resident for COVID-19.

Regarding staff, the DDS guidance states only that a staff member who does test positive for COVID-19, but who does not show symptoms of the virus, is excluded from working in the residence for at least seven days from the date of the test. A staff member who tests positive and who does have symptoms is excluded from working for three days after they have recovered from the illness and at least seven days since the symptoms first appeared.

Slow start to the testing

COFAR is also concerned about what appears to be a slow start to the testing of residents and staff in the group homes. Earlier this month, DDS announced that the state was contracting with Fallon Ambulance Service to begin testing staff and residents throughout the system.

Klaskin said DDS does not have a timeline for Fallon to complete its testing of what we are estimating to be 22,000 or more residents and staff in the DDS group home system. It’s unclear why the National Guard is apparently being used to test residents and staff in Department of Public Health (DPH) nursing homes and other long-term care facilities, but not in DDS facilities.

DDS reported that as of April 19, 1,964 residents and staff had been tested in DDS group homes and at the Wrentham and Hogan centers by Fallon. This averages to less than 196 tests a day over the first 10 days in the group homes.

In an email sent to a COFAR Board member earlier this month, DDS Commissioner Jane Ryder stated that Fallon had the capacity to do up to 1,000 tests a day.

DDS does not have data on total test numbers in group homes

It is apparently not possible to compare the number of residents and staff testing positive in DDS-funded group homes with the total number actually tested.

As noted, a total of 518 residents and 653 staff have tested positive in the group homes. That number, however, includes people tested before Fallon started, Klaskin said.

While Fallon has tested 1,964 residents in the past 10 days, Klaskin said DDS doesn’t have information on the total of the number of persons tested prior to Fallon. So there appears to be no way to compare apples to apples in that respect.

DDS testing numbers not broken out by either COVID-19 Command Center or DPH

DPH, meanwhile, continues to track and publicly report detailed numbers on COVID-19 cases in nursing homes and other long-term care facilities that the department oversees. But DPH does not report numbers on DDS long-term care facilities, including the group homes and developmental centers.

Even though the administration’s COVID-19 Command Center has begun putting out information that includes DDS facilities, the numbers for those DDS facilities are not broken out from the totals.

For instance, a Command Center report stated that as of April 19, 3,743 tests were done at 206 group homes and “care sites” involving 2,297 clients and 1,146 staff among facilities funded by DDS, DPH, the Department of Children and Families, and the Department of Mental Health. That information is potentially of limited value unless it were to show a breakdown of the numbers in the facilities for each of those agencies.

As we have noted to legislators and policymakers, the families and guardians of close to 10,000 DDS residential clients are still largely being left in the dark because so little information about their loved ones is forthcoming from the administration.

We have contacted the chairs of the Legislature’s Children, Families, and Persons with Disabilities Committee and asked them, among others, to follow up with the administration to urge improvements in these DDS testing and reporting practices.

The Department of Developmental Services (DDS) intends to test residents in all group homes in the state for COVID-19, DDS Commissioner Jane Ryder and other department officials told COFAR yesterday.

In a conference call, Ryder and other officials described a broad testing program that has already been completed in the state’s two developmental centers. As of this past Friday, the mobile testing program began in both state and corporate provider-operated group homes across the commonwealth.

Ryder said the group home testing program is being carried out by Fallon Ambulance Service in partnership with MassHealth. The ambulance service, which employs a team of testers, is based in Quincy, but operates across the state.

Ryder said residents and staff will be “prioritized” for testing if they exhibit flu-like symptoms. COFAR has raised questions about that policy and has called for immediate testing of all residents whether they are symptomatic or not.

Company will test in thousands of group homes in Massachusetts

There are 2,100 provider-run group homes dispersed around the state in Massachusetts, housing more than 7,800 residents, according to DDS. There are another 1,066 residents of state-operated group homes. During Tuesday’s conference call, the DDS officials did not offer a timeline for completing the tests, which are also intended to include staff in the residences.

Given that National Guard personnel are currently being used to test residents in nursing homes and other long-term care facilities in the state, COFAR has suggested that the National Guard might also be deployed to speed up the testing process in DDS group homes.

The testing consists of the use of nasopharyngeal swabs, which are considered the most reliable type of test. Results take from 24 to 72 hours to obtain, Ryder said.

We asked how many mobile testers Fallon Ambulance currently has and how quickly the testing can actually be done. No one answered that question during Tuesday’s conference call, although Ryder told a COFAR Board member in an email on Monday that “Fallon (Ambulance Service) has the ability to perform between 500 to 1,000 test per day.”

COFAR Board President Thomas Frain said an official with Fallon told him that given that the ambulance company is facing the prospect of testing close to 9,000 residents in both the state-run and provider-run group homes as well as an undetermined number of staff in those facilities, the testing was a “long-term” project.

DDS General Counsel Marianne Meacham said guardians can also arrange to have residents tested by their primary care doctors, and that the mobile testing program is seen as an addition to that.

DDS Chief of Staff Chris Thompson added that guardians and family can obtain “telemedical appointments” with MassHealth to discuss symptoms. They should go to www.buoy.com/mass

Questions about prioritizing residents for testing

COFAR has questioned the DDS policy of testing group home residents showing flu-like symptoms before testing anyone else. Frain maintained that research shows asymptomatic residents can be just as likely to transmit the virus as those exhibiting symptoms.

Frain noted an NPR report this week concerning a nursing home in King County, Washington in which a third of the 82 residents tested positive for the coronavirus in mid-March. Half of those were free of fever, malaise and coughing when they were swabbed for the virus, though most went on to develop symptoms. The coronavirus “spread rapidly through the facility just two weeks after it was introduced by a health care provider, despite the nursing home’s policy of isolating residents with signs of COVID-19.”

Information on test results

In Tuesday’s conference call, we reiterated our call on DDS to publicly report infection rates of persons in the DDS system, and asked about getting periodic reports on the results of the mobile testing. Meacham said DDS will provide COFAR with testing numbers when the Department has data “from at least a full week so that we have a sense of the progress of testing our community.”

Alternative sites for relocated residents

Ryder said that for those residents who are symptomatic and need to be relocated from their residences, DDS has identified three sites at the Wrentham and Hogan Centers and at the former Templeton Developmental Center where there are spaces that can be used to quarantine individuals. Ryder said these are not planned to be medical facilities.

New COVID-19 guidance document for providers

Thompson also outlined highlights of a “comprehensive” residential program guidance document just issued and shared with providers.  The 16-page document updates the EOHHS guidance document of March 25. There is also a one-page summary document for all group home managers and staff.

Highlights include:

• A requirement that all staff wear face masks during shifts. Those should be surgical masks when possible or else cloth masks that comply with CDC guidelines. In emergencies, providers can ask for personal protective equipment from the Massachusetts Emergency Management Agency (MEMA).
• Staff will have their temperature taken prior to entering any residence. Anyone with a temperature of 100.4 or higher will not be allowed to enter.
• Staff who test positive but show no symptoms will be restricted from working for at least 7 days. If they do have symptoms, they must stay away from work for at 3 days after they have recovered and at least 7 days after the first symptoms appeared.
• If a resident shows symptoms or tests positive, the decision whether to provide on-site care or move the person to another location will be made on a case-by-case basis after consulting the local board of health. The family or guardian would have to be notified of any decision to relocate someone. (See discussion above about alternative sites at Wrentham, Hogan, and Templeton.)

Meacham provided the following links to the Department’s new guidance document and to its updated COVID-19 information on its website:

• DDS Residential Program Guidance: https://www.mass.gov/doc/dds-residential-program-guidance-dds-updated-april-13/download
• DDS One Page Guidance for Group Home Staff: https://www.mass.gov/doc/dds-one-page-guidance-for-group-home-staff-dds-april-13/download
• Coronavirus Update for DDS Individuals and Families: https://www.mass.gov/news/coronavirus-update-for-individuals-and-families-april-14

Please stay tuned for further information as we get it from DDS and other sources, including the promised test results.

We have been calling for COVID-19 testing of persons with intellectual and developmental disabilities and their caregivers in Massachusetts, and it appears the Baker administration has finally begun doing so.

In an email Saturday (April 11) to COFAR Executive Director Colleen M. Lutkevich, Marylou Sudders, secretary of Health and Human Services, said the administration “has started mobile testing for individuals in DDS (Department of Developmental Services) group homes.”

Also on Sunday, Lutkevich said she was informed that testing of residents and staff had begun at the Wrentham Developmental Center and the Hogan Regional Center in Danvers, the state’s two remaining Intermediate Care Facilities for the developmentally disabled (ICFs).

COFAR maintains that such testing is essential because group homes are potential targets for the rapid spread of the virus. The lack of testing of residents and staff in DDS residential facilities has contributed to a lack of resources for protection and care of both staff and residents.

While the testing is a welcome and necessary development, it remains unclear whether the administration’s plans call for testing of all residents in corporate provider-run residences funded by DDS, and what that testing timeline would be. There are 2,100 provider-run group homes dispersed around the state, housing more than 7,800 residents, according to DDS.

In an email sent Sunday to Sudders and DDS Commissioner Jane Ryder, Lutkevich and COFAR Board President Thomas J. Frain asked for clarification of the scope of the overall testing program and whether there are plans to deploy National Guard personnel to carry out the testing throughout the provider group home system.  The National Guard is currently being used to test residents in nursing homes and other long-term care facilities in the state.

Staff at the Wrentham Center were given the option Sunday of getting tested at Gillette Stadium in Foxborough, but most were opting to be tested at the Wrentham ICF. The Wrentham Center was using teams to go into each residence on the campus and was doing staff testing in tents.

There were 235 residents at the Wrentham Center and 117 residents at the Hogan Center as of the start of the current fiscal year. COFAR was informed that all Hogan and Wrentham Center residents and most of the staff had been tested as of Sunday.

At least one parent of a resident at a state-operated group home in the northeast region of the state reported on Sunday that testing was about to begin of residents there. There are currently 1,066 residents of state-operated group homes throughout the state, according to DDS.

COFAR has continued to call on Sudders to publicly report the results of any and all testing done of individuals in the DDS system.  Sudders last week denied COFAR’s request that the Department of Public Health (DPH) provide public updates on confirmed cases of infections and deaths in DDS-funded residential facilities.

On April 10, COFAR sent an email to Sudders asking for the basis and reasoning for her denial. DPH currently publishes daily updates on its website of the numbers of persons in the state who have died and who have tested positive from COVID-19. In addition, those daily updates list numbers of infected persons and deaths in “long-term care facilities.”

However, no information is reported in the DPH updates specifically on numbers of residents or staff of DDS-funded group homes or ICFs who have died or become infected even though those facilities also provide long-term residential care.

According to the published DPH data, approximately 50% of the COVID-19 deaths in the state are among residents of long-term care facilities. Frain maintained that care for those long-term care facility residents identified by the DPH “is funded similarly to care for the residential DDS population, and all of those individuals are very vulnerable and rich targets for COVID-19.”

In an email to Sudders on Saturday, Frain maintained that “in Massachusetts, many of the group homes are essentially petri dishes for the spread of the virus.”

According to media reports on April 9, 122 residents and 150 staff had tested positive for COVID-19 in DDS facilities. There had been 3 deaths reported. That is the latest information COFAR has been able to obtain on deaths and infection rates in DDS facilities because of the lack of public information from the administration.

COFAR and its affiliate, the Wrentham Family Association, have also called for distributions of personal protective equipment in the developmental centers and group homes, and asked that “appropriate precautions then be made for all who test positive (isolation, quarantine).”

A thanks to the media from Colleen

Thank you to everyone who helped with this effort to advocate for DDS clients and their families, especially our most reliable media friends at Channel 5 Boston, (Kevin Rothstein and Mike Beaudet), WGBH radio, (Isaiah Thompson and Mark Herz), the Salem News (Julie Manganis) and the Worcester Telegram (Elaine Thompson).  Their willingness to report on this story made all the difference.  Wishing everyone health and safety.