Archive

Archive for February, 2021

Records imply ‘strong’ disagreement in Baker administration last summer over mandatory COVID testing of DDS staff

February 25, 2021 3 comments

Top administrators in the Baker administration appeared to strongly disagree last summer over whether to require testing of staff for COVID-19 in group homes and other residential facilities for persons with developmental disabilities, according to emails received under a state Public Records Law request.

The emails, provided earlier this month to COFAR by the Department of Public Health (DPH), appear to imply that as late as last July, both Health and Human Services Secretary Marylou Sudders and Assistant Secretary for MassHealth Daniel Tsai strongly opposed mandatory testing of staff in residential facilities in the Department of Developmental Services (DDS) system.

At the same time, the emails indicated that DPH Commissioner Monica Bharel and members of her office supported mandatory testing.

Sudders has not responded to a request for comment on the matter. In an email to COFAR sent today (February 25), Jennifer Barrelle, Bharel’s chief of staff, said Sudders “was supportive of mandatory testing…”  However, Barrelle’s email was unclear as to when Sudders’ support began.

Sudders’ agency, the Executive Office of Health and Human Services (EOHHS), oversees departments such as DDS and DPH. By mid-August, EOHHS finally issued a directive requiring testing of staff throughout the human services system. However, this was some five months after the pandemic became a full-blown crisis in the state.

The apparent opposition by Sudders and Tsai at the top of the human services secretariat as late as July could help explain the lengthy delay in implementing the mandatory testing of residential staff.

COFAR and other advocacy organizations had urged mandatory testing as early as April 2020, arguing that staff were potentially a major source of the introduction of the virus in group homes and other residential facilities. Sudders and other administration officials have never explained why it took so long to finally require staff to be tested.

I sent emails on Sunday (February 21) to both Sudders and Bharel, asking for their comment on the newly provided emails. As noted, Sudders has not responded.

In one internal DPH email, dated July 8, 2020, Bharel stated to several members of her office that she had just spoken with Assistant EOHHS Secretary Tsai:

 …and he feels strongly and say (sic) the Secretary (Sudders) does too — around mandatory testing for staff. But he is willing to think it through and learn more. We can discuss at our 10 am call Friday- I know folks on this email have strong beliefs.

Bharel didn’t say in the email what those beliefs were — just that Sudders, Tsai, and “folks on this email” had “strong beliefs” about mandatory testing of staff. The implication, however, was that Sudders and Tsai had different beliefs than did Bharel and her team.

Meanwhile, an internal DPH discussion document in July recommended mandatory testing of congregate care staff.

In her July 8 email, Bharel asked a member of her office to find other instances around the country in which staff testing was mandatory, apparently in order to help make the case to Sudders and Tsai for mandatory testing in Massachusetts.

Bharel further asked in the email whether there was “a model for how many staff need to be tested to feel the surveillance (ongoing testing of staff) is enough? 50%? 60%? How do you decide?”

In her email to COFAR today, Barrelle said that in implementing the mandatory testing program, the administration was involved in negotiations with state employee unions. At least one union filed unfair labor charges against the state for the mandatory testing program, she said.

“You are incorrectly interpreting that Secretary Sudders was opposed to mandatory staff testing,” Barrelle’s email to COFAR stated. “Secretary Sudders was supportive of mandatory testing and rolled it out across all congregate care programs within health and human services within weeks of these (July internal DPH) emails.”

Barrelle’s email to COFAR was not clear, however, as to whether Sudders’ support for mandatory testing may have only begun after July.

DPH office found examples of mandatory staff testing

In a July 9, 2020, email in response to Bharel’s query to her office about other jurisdictions that had implemented mandatory staff testing, the office member provided links to online media accounts in July of testing requirements for staff in colleges and private sector settings.

The office member then noted that in June, the State of Connecticut had begun requiring staff in nursing homes and congregate care settings in that state to be tested for the virus. That was some two months before the Baker administration in Massachusetts issued its mandatory testing directive.

DPH July discussion document recommended staff testing

In addition to the July emails within DPH, a document slated for discussion in Bharel’s office in July included, as a “key question for discussion,” whether COVID testing should be a “mandatory requirement” of staff in state-operated facilities, including hospitals and congregate care facilities.

Option A, which was recommended in the discussion document, was “Yes, testing is a mandatory requirement in state-operated facilities with a goal of achieving full (~90%) compliance.” It wasn’t clear whether this option did or did not include provider-operated facilities.

Under Option A, staff would be given three chances to comply with testing, with a first refusal resulting in a 5-day leave; a second refusal resulting in a 14-day leave; and a third refusal resulting in termination of employment.

Option B was “No, staff are able to refuse testing.”

This second option stated that without mandatory testing, “experience demonstrates that to-date, state-operated facilities are able to achieve 50-65% compliance when access barriers (e.g., shift timing) are limited to the extent possible.”

EOHHS guidance on staff testing, which, as noted, was issued in August by the administration, does not appear to refer to any penalties for staff testing refusals.

Records came from DPH, but not from EOHHS 

We initially filed Public Records Law requests last May with EOHHS, DPH, and DDS for internal emails regarding the mandatory testing issue. In June, after EOHHS indicated their responsive records would be voluminous, we modified our request to limit it to emails between Sudders and her executive team.

We received the emails noted above from DPH on February 1. We never received any records from DDS.

On September 30, after two appeals, EOHHS provided us with just one internal email, dated May 22, which consisted solely of a reprint of a blog post that we had published about mandatory testing a few days previously (COFAR Blog: DDS may be flouting state and federal guidelines in failing to make testing of group home staff mandatory).

That sole EOHHS email did not include Sudders on the thread and contained no comment on the subject of mandatory testing or our blog post. Given EOHHS’s initial claim that they had a large number of responsive emails, we again appealed to the Public Records Division, contending it was unlikely there was only one email in existence in the agency on the issue.

On October 15, 2020, the Public Records Supervisor ordered EOHHS to identify other potentially responsive records within 10 days to our original public records request. But EOHHS never acted in compliance with the Supervisor’s order. We received no further communications from EOHHS.

In our email to Sudders on Sunday, we asked why EOHHS still had not complied with the Public Records Supervisor’s October 15 order regarding our records request, and whether the agency intends to comply with it.

Administration still does not report COVID testing results for provider-based staff

In addition to being slow to require testing of staff in the DDS system, the administration has had a spotty record of reporting the results of that testing.

It was not until May that EOHHS began publicly reporting testing data in the DDS system; but the reporting system has continued to have major gaps in it. Those reports contain no information, for instance, on the number of infected staff in DDS provider-run residences, which constitute, by far, the largest network of DDS group homes.

Starting in November, weekly state facility reports had begun showing results of testing on provider staff in all EOHHS human services group homes. But not only were those reports not broken down by individual agency, such as DDS, the reports started combining provider-run group home results with state-run group homes as of February 16 of this year (see final page).

We previously reported that eight emails we did receive from EOHHS in August, based on a separate Public Records Request, showed a consensus in that agency to reduce public reporting of testing data in the human services system.

EOHHS’s lack of commitment to keeping the public informed about the impact of COVID-19 on the DDS system is disturbing. It is also concerning that EOHHS was apparently not in favor for five months of mandatory testing of staff for the virus.

The lack of such testing potentially exposed thousands of residents of DDS facilities to infection. Had mandatory staff testing occurred earlier, an untold number of COVID cases among residents and staff in the system may have been prevented.

 

As more people get vaccinated in the DDS system, COVID rates appear to be declining

February 15, 2021 Leave a comment

Reflecting a decline in COVID-19 infection rates in the state as a whole, the latest data available in weekly state facilities reports show a drop-off in recent weeks in the numbers of persons testing positive in the Department of Developmental Services (DDS) system.

While that decline appears to be at least partly due to vaccinations that have been ongoing in the system, Baker administration officials have not yet responded to our request last week for comment on the possible trend.

Here are some COVID testing numbers in various DDS residential categories, taken from the latest state facilities report as of February 9, and from previous reports:

DDS state-operated group homes

The number of residents in state-operated group homes testing positive for COVID-19 reached a high of 43 as of January 26, and dropped to 18 as of February 9.

The number of staff in those residences testing positive reached an all-time high of 111 as of December 22, and dropped to 60 as of February 9.

DDS provider-operated group homes

The number of residents in provider-operated group homes testing positive reached an all-time high of 305 as of January 19, and dropped to 111 as of February 9.

There are no data specifically regarding COVID-positive staff in DDS provider-operated group homes.

Wrentham Developmental Center (WDC)

The number of residents at WDC testing positive reached an all-time high of 11 as of January 12, and dropped to 0 as of February 9.

The number of staff at WDC testing positive reached an all-time high of 32 as of January 12, and dropped to 12 as of February 9.

Hogan Regional Center

The number of residents at Hogan testing positive reached a high of 8 as of January 12, and dropped to 0 as of February 9.

The number of staff at Hogan testing positive reached an all-time high of 23 as of December 29, and dropped to less than 5 as of February 9.

Below is a graph showing the positive test curve for provider group home residents since last June. It’s typical of the data arc for the other categories:

Possible role of vaccinations

It appears possible that the recent decline in COVID positive test results in the DDS system is at least partly due to the introduction of vaccines in DDS facilities.

Phase 1 of the state’s Vaccination Plan included residents and staff of DDS long-term care and congregate-care facilities as priority vaccination recipients. But there has been no information provided by the administration on how many DDS residents and staff have been vaccinated so far.

CNN reported Sunday that officials were hopeful that for the nation as a whole, the continued ramping up of vaccinations was “beginning to shift the pandemic’s course in a positive direction.”

Little information available on vaccinations in the DDS system in Massachusetts

The Baker administration recently began publishing online information showing the number of vaccine doses shipped to Massachusetts and the number administered to residents, broken down by age, gender, county, race, and ethnicity. But the online data does not break the numbers down by disability or show how many people have been vaccinated in the DDS system.

On Friday (February 12), I emailed state Health and Human Services Secretary Marylou Sudders and DDS Commissioner Jane Ryder, asking whether they would agree that there has been a potentially significant drop in COVID-positive residents and staff in the DDS system.  I also asked whether that drop might be due to the vaccinations of residents and staff in the system. As noted, I haven’t yet received a reply.

The decline in positive test results could be temporary

The CNN article noted above reported that some 38 million people have received their first dose of the two-dose vaccines available to the US market, and about 14 million people have been fully vaccinated.

But the article stated that while Covid-19 numbers may be trending in the right direction now, four key factors will determine whether those trends continue. Two factors contributing to the downward trajectory in infection rates are the increasing vaccinations and a pattern of lower transmission that’s likely in the US during the spring and summer months.

Two other factors, however, can slow or even reverse the declines. One of those factors is the spread of the B.1.1.7 variant, which was first identified in the UK. Another key factor is increased behaviors that favor COVID-19 transmission such as frequenting high-risk settings, including indoor dining.

The article reported that experts believe now is not the time for the US to let down its guard, “even as a growing list of governors loosen Covid-19 restrictions.”

We will continue to monitor the state’s COVID testing reports for DDS facilities. While those reports could be more informative — they should include test results for provider staff, for instance — they at least provide measurable data on COVID infection rates in the DDS system.

We hope the administration will begin to provide similar online information on vaccine doses administered in the DDS system so that we can all better understand ongoing COVID trends in that system.

Pandemic relief bill would jeopardize jobs for people with developmental disabilities by eliminating subminimum wages

February 9, 2021 1 comment

President Biden’s $1.9 trillion economic stimulus bill now being negotiated in Congress contains vital economic relief for individuals, businesses, and state and local governments.

But it is also the latest vehicle for continuing efforts to eliminate both subminimum wages and congregate or vocational work centers for persons with disabilities.

In an email we sent yesterday (February 8) to Massachusetts Senator Elizabeth Warren, we noted that the elimination in the COVID pandemic relief bill of subminimum wages would reduce or eliminate employment opportunities for thousands of people with intellectual and developmental disabilities (I/DD) in Massachusetts and other states.

Warren has, in the past, taken a lead role in calling for the elimination of the Section 14(c) wage certificates that allow the payment of subminimum wages to persons with disabilities.

We previously contacted Senator Warren about this issue, hoping she might reverse her position on it. We’re still hoping for such a reversal from Warren and many other members of Congress, but that may be an uphill battle.

Myths about paying subminimum wages

The claim that vocational work centers and 14(c) certificates promote exploitation or segregation of people with I/DD is misinformed. First of all, vocational work centers, which were formerly known as sheltered workshops, have always been a choice available to disabled persons and their families and guardians. No one has been forced to work in those centers in order to support themselves financially.

Our national affiliate, the VOR, notes that the vocational centers and 14(c) certificates “afford workers opportunities to build self-esteem, develop friendships, and engage in their communities.” As the VOR points out, people who work at these centers “do so without fear of being fired or of having to live up to competitive standards of productivity in order to show their worth. Earned wages, though appreciated, are not the substantive reward for these individuals.”

Among the other myths that have led to the movement to eliminate the 14(c) certificates is that paying low wages to people with disabilities will harm their economic potential and will force them to remain reliant on state and federal support.

What that myth overlooks is the reality that people with I/DD have chronic and lifelong disabilities that will not change for them. The fact that they are reliant on state and federal support is not a failure on their part, but rather an indication that for some members of society, public assistance will always be needed.

But whether legislators agree or disagree with the concept of subminimum wages for the disabled, we don’t think emergency economic stimulus legislation is a proper vehicle for that debate. We are asking lawmakers and their staffs to take time to consider this issue before moving ahead with the elimination of these critically important wage certificates and vocational programs.

We are also asking you to call your members of the U.S. House and Senate to urge them to remove the provision in the stimulus bill that would eliminate the 14(c) certificates.

A contact link for your senators and representatives is here. You can copy and paste in this text on the legislators’ website contact forms.

The linked text asks lawmakers to listen to family members and guardians, such as yourself, who know what is best for their loved ones.

Gov’s proposed FY22 DDS budget would boost provider-run group home funding, but cut day program and transportation funding

February 2, 2021 3 comments

UPDATE TO OUR FEB. 2 BLOG POST:

A DDS spokesperson confirmed yesterday (Feb. 3) that cuts proposed in Governor Baker’s Fiscal 2022 budget in DDS community-based day and transportation programs are due to “the ripple effects of COVID-19 restrictions.”

Those COVID restrictions are expected to continue into Fiscal 2022, which starts on July 1, according to DDS spokesman Christopher Klaskin.

Klaskin said the administration has proposed transfer language to reallocate funding to the community-based day and work and transportation accounts if demand for those programs increases.

If so, that’s good news, although it remains to be seen to what degree those allocations would be made.

Klaskin also stated that DDS and its providers “have worked to accelerate” virtual programming such as Zoom sessions “that can supplement and in some cases replace in-person day services.” (my emphasis)

It is concerning to us that even prior to COVID, many day programs were apparently providing little in the way of meaningful work activities to clients. We have frequently heard from families and guardians that their loved ones have been frustrated and bored in their day programs, particularly after the closures of the sheltered workshops.

The problem has been made worse by the pandemic; and the use of remote or virtual communication formats such as Zoom has not been a satisfactory substitute for many clients, according to reports we’ve gotten.

I asked Klaskin in our email exchange this morning if DDS is considering the use of virtual programming to permanently replace some day program activities.

Our original blog post from February 2 is below:

Governor Baker’s proposed Fiscal Year 2022 budget would boost funding to the Department of Developmental Services (DDS) overall; yet the governor is proposing significant cuts in DDS-funded day and transportation programs.

The proposed cuts appear to reflect the impact of the COVID crisis on the day programs, in particular.

As usual, the governor’s budget would provide a huge increase in funding to the corporate provider-based residential system. And as usual, his budget would shortchange state-operated group homes and developmental centers.

Overall, Baker’s proposal would raise the total DDS budget from $2.1 billion to $2.3 billion. Within that DDS budget, the day program line item would be cut by 14.4%, or $34.6 million. The transportation line item would be cut by 40%, or $13 million.

Among the questions we have is whether the administration believes the day programs will only slowly recover clients who were kept out of them due to the pandemic. Will those DDS clients continue to be without day programs over the next year?

At the start of the COVID crisis last March, DDS shut down all day programs. However, as the crisis appeared to be subsiding somewhat, day programs for DDS clients were reopened in late July.  Guardians were nevertheless asked by the administration to sign a release form that would absolve day program providers of legal liability if a client contracted the virus.

Many family members indicated they didn’t want to sign such a form, and an undetermined number of residential providers declined to send residents to the day programs. In mid-August, the administration appeared to backtrack on the release form requirement. DDS Commissioner Jane Ryder said guidance on the form was being revised, but confusion remained over the matter.

In an email query on Monday morning to Ryder, I asked whether the apparent retrenchment in day programs might be permanent.

I also asked what the current number of clients in day programs is, and how that number compares to the pre-COVID period. Also, how many day programs have closed entirely due to the pandemic? We think answers to those questions would be very important for our families in the DDS system to have.

Usual commitment to provider group homes while starving the state-run group homes

Baker’s budget proposes a $121 million, or 9.4% increase in the provider residential line item, bringing total funding under the line item to $1.4 billion. Much of that increase may have actually been implemented in the current fiscal year in the form of emergency funding due to the COVID crisis.

Additional funding also appears to have come from the Chapter 257 reserve fund, which is intended to fund provider residential contracts. The Chapter 257 fund received a huge increase in the current fiscal year — from $41 million last year, to $160 million. That appears to be a one-time infusion. Baker’s FY22 budget would fund the reserve fund at $79 million. That is nevertheless an increase over FY 2020 of $38 million.

As usual, the state-operated group homes would get relatively little in FY22. The state-operated group home line item would be increased by only 1.2%, or $2.7 million, to $240.5 million under Baker’s budget. That may not even be more than the inflation rate. The developmental center line item would, as usual, be cut by about half a million dollars.

The chart below shows the different trajectories of funding approved by the Legislature for both provider-run and state-run group homes, and state-run developmental centers since FY 2012.

As we’ve previously noted, the major increases in funding to the provider-based line item since FY12 have enabled the corporate providers in the DDS system to garner sizeable surplus revenues in the intervening years. Those surpluses have enabled the providers to provide yearly increases in executive salaries, but have not translated into living wages for direct-care workers employed by them.

Also slated for major funding cuts under Baker’s FY22 budget are the DDS autism accounts. The respite and family supports account would be level-funded, which amounts to a cut if adjusted for inflation.

The DDS administration account, which funds service coordinators, would get a modest 1% increase in funding under the governor’s budget, which would not keep up with inflation. However, the Turning 22 program would get a major increase — from $25 million to nearly $80 million.

The governor’s budget would continue a series of increases in recent years to the Disabled Persons Protection Commission (DPPC), which would get a $2 million or 36% increase over the current-year appropriation. The DPPC, which is the state’s only independent agency for investigating abuse and neglect of disabled adults under age 60, remains chronically underfunded.

Unfortunately, as noted, the governor and Legislature continue to maintain an imbalance in funding between provider-run and state-run services in the DDS system. Our immediate concern, however, are the planned cuts in funding to day and transportation programs. We hope to get some answers regarding those programs soon.

%d bloggers like this: